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Sorry to hear it Blackhawk. There’s lots of new cancer drugs in trials, a few from a company called Gennentech (sp?) – worth checking out to see if you can get her in a trial if they’d help, some real revolutionary ones are going to come to market soon.
thanks! — we’re finally done with radiation so we don’t have to drive to Redding (2 hours each way) every day. We do an MRI of the brain in 4 – 6 weeks to see how the chemo and radiation have worked.
If the tumor is still there and growing, then we are going to do a clinical trial at the City of Hope Hospital in Los Angeles.
The new therapy basically comes from the Israeli Scorpion which feeds on cockroaches. The cockroaches have a molecule in their muscle tissue that the venom of the scorpion attaches to and paralyzes. The same molecule exists in brain tumor tissue. So they attach radioactive iodine to the scorpion venom molecule and inject it directly into the brain. The venom attaches only to the brain tumor thus making the radioactive material only harmful to the tumor and not to the healthy tissue.
Two people in an 18 person study had full remission. So, if we didn’t get it this time — :fencing: — we have another fight lined up.
thanks everyone for your support!
Bernie-
Thanks for the update. I know that everyone here is rooting and praying for you.
Bernie Kristen
Sounds like you guys have been doing some research that’s good keep the doctors on their toes.Keep the faith guys
Kristen I wish you a speedy recoveryBrad
Hi Bernie,
I just wanted to tell you that, for my book on cancer survivors, I just interviewed a 13 year survivor of Glioblastoma Multiforme Grade IV.
She was diagnosed in 1993 and went through radiation only (Temodar wasn’t available back then) as part of a clinical trial at Dana Farber Cancer Ctr in Boston.
Needless to say, and as I’m sure you already know with glioblastomas, the tumor responded well to treatment at first and everything was looking good but then it returned about a year later.
At that point, she opted to do dramatic gamma knife surgery. The doctors told her that she may or may not live through the surgery, but she figured she had nothing to lose so she did it. She woke up and had no vision, but 3 months later, her vision returned.
Since then, it has been 13 years and she has suffered no real impairment except her peripheral vision in her left eye is a little weird.
So I’m sure you already know that there are people out there that survive glioblastoma multiforme, but I just wanted to reiterate that fact.
I can also put you in touch with her, if you’d like.-Kevin-
