Hi Bernie,
I just wanted to tell you that, for my book on cancer survivors, I just interviewed a 13 year survivor of Glioblastoma Multiforme Grade IV.
She was diagnosed in 1993 and went through radiation only (Temodar wasn’t available back then) as part of a clinical trial at Dana Farber Cancer Ctr in Boston.
Needless to say, and as I’m sure you already know with glioblastomas, the tumor responded well to treatment at first and everything was looking good but then it returned about a year later.
At that point, she opted to do dramatic gamma knife surgery. The doctors told her that she may or may not live through the surgery, but she figured she had nothing to lose so she did it. She woke up and had no vision, but 3 months later, her vision returned.
Since then, it has been 13 years and she has suffered no real impairment except her peripheral vision in her left eye is a little weird.
So I’m sure you already know that there are people out there that survive glioblastoma multiforme, but I just wanted to reiterate that fact.
I can also put you in touch with her, if you’d like.
-Kevin-